Showing posts with label ms. Show all posts
Showing posts with label ms. Show all posts

4.03.2012

Adjective Heavens!

It is April. Welcome to that, for all that it may be (but, in my experience, typically isn't) worth. It seems nice enough outdoors, and it is, here in Baltimore. Not that I'd really know, having sat in uncomfortable proximity to my feelings over the weekend.

Sunday was Glenn's memorial service, and I attended. It was jocundity in the face of tragedy, with tenderness and laughter and uncharacteristically articulate accounts of Glenn when he was among us. New friendships were forged, by way of connectedness unearthed by the common vulnerability of our grief, that will doubtless span and endure decades. And, from everything that I could tell, none of it softened the precipitous sense of loss that we felt. But we all seemed to realize that there was little, if anything, that we could do to address that pain, so we tacitly agreed to transcend it with our unique respective love for our dear friend.

And here we sit, among the setting and trappings of April. Life is not moving as deliberately, nor with as much alacrity, as I would choose (if ever I were faced with a choice). I wonder if there's an April equivalent to the axiom that's wielded in concert with the idea of March. You've heard it a nauseating number of times, I'm sure: "in like a lion, out like a lamb." That's a very beautiful concept, and I do love beauty so, but what if the lamb gets eaten by the lion that will no doubt say, in arrogant Lionese, "April Fool!"?

I'll tell you what if. Everyone would be revealed as an outright sucker in that equation--including lions, dwellers of the jungle, having been left to suffer the failed fruits of their hunger with cold weather.

Having just said all of that, I am completely unaware of the current temperature or climate or whathaveyou. I long to see Molly, Desmond, and Ivor, I ponder just how I'll return home (awaiting a delinquent paycheck), and I'm reminded with maximal poignancy about all that I've learned to accept NOT having in life. This neither implies nor infers anything about what I DO have, as all of that is totally amazing. But it seems labor-intensive in a way that it shouldn't be. So, armed with some-or-other strength, I would like very much to declare the following for myself, I hope that you're ready. I am not ready.

1. I am not disabled. Yes, I have a disease and all of its accordant issues, but I remain aware of the world around me, am desperate to contribute to it,  and won't (although I'd love to) mail satchels of barf to all of the purveyors of abuse and hapless judgment that I have encountered regarding my health. To them, I have only to say: YOU ARE MAKING THIS INCALCULABLY WORSE.

2. I need a reliable job. This is more serious than it's possible to imagine. While it may seem reductive to say that this is all that I need, it is the agonizing truth. The stress that my family and I feel from the relentless drip-drab of freelancing and unpredictable pay cycles is positively lethal. I am able to work. I want badly to work. This New-Age bullshit of visualizing a bountiful future is all well and good, but I have applied to 1,400 jobs. It has been said (by Albert Einstein or Benjamin Franklin [or another person of far-greater financial means than meager old me, no doubt]) that "insanity is doing the same thing over and over and expecting different results." Well, does that mean that I should refrain from applying for jobs?

3. I am committed to parenting. This supersedes everything else in my life, and the level of resentment that I feel toward those that have ignorantly drawn conclusions to the contrary cannot be exaggerated. I do not wish to inundate my children with television or plastic or sex-role stereotypes that will instill them with the same hinges and buttons, the same onus of irrelevant privilege, that I have worked tirelessly to surmount. My goal with my children is to help them be, without shame or fear, exactly themselves. And, despite, or even because of, my health, I am a capable and conscientious parent.

I have become so incensed with the well-meaning attempts to corral me that are actually deleterious that I am quite sure that I need to end here and possibly sleep.

1.11.2012

I Concede, with Apologies

It can now be revealed that the colossal post-in-process of which I spoke yesterday pertained to having Multiple Sclerosis and the horrors of navigating the Social-Security disability process and how I could live in nearly ANY other country and not have to worry about the affordability and accessibility of healthcare. I'm happy to say that I have discarded said post, even though it had already occupied hours of my time--in part because I feel such anger toward the various hamfisted forces of bossiness obscuring the most-precious aspects of being a Human Person, that I can't even subject myself to it. It's taken way too much energy already. I hope that you understand.

12.30.2011

Adjustments: Undue Homework

In "preparation" for twenty twelve (whose name I'd write numerically, were its sequence of numbers not so, you know, counterintuitive, which is to say nearly nothing per the stunted force inside of me believes that unabbreviated living will somehow lead to a life of unfathomable bounty in tender of tremendous importance that is not necessarily negotiable), and amid chronic financial emergency, I have been inspired to review all sorts of "material," shocked to understand at last and at length how very little of it is actually tangible. In a year of precipitous peaks and troughs, I see their collective occurrence as having been dictated and defined by forces and systems of human construction.The weight of this reflection, and the futile hilarity of its implications, feels rather like trying to speak, yet emitting the sound of an activated whoopee cushion in lieu of a voice.

(time elapsed)

It must be stated at this point that I have yet to determine the structure and/or frequency of these posts. It's very clear, during the tumult of the season, that we have to give ourselves over to cleaning; there seems to be little choice by now. I guess that it's sensible to do this, but more significantly, it might keep people from injuring themselves on pernicious obstructions that masqueraded once as "gifts." While it's unfair to inflict attributions of motive upon inanimate things  (as if I know, for instance, that those legos on the floor want to cause pain to my bare feet), I don't think that I care any longer whose interests are at stake.

(time elapsed)

what a fizzlefest cleaning has been! hell if the rooms that i "tidied" are not substantially less navigable than the rooms to which others attended.

certain close associates think that multiple sclerosis has eroded my executive function, and they should be right, but i think that it's more my un(der)developed sense of personal boundaries that has done me in at every turn. it's how come stress acts as a toxin to my body, how come i'm challenged to request compensation for my work, and how come i'm reluctant, despite what most people think, to admit what it is that want. i smell a resolution approaching; i am replete with vague, ominous nausea.

i think that i'll go and prepare for New Year's Eve by ending New Year's Eve Eve.  

12.26.2011

Afoot Ahead Ago (Go)

(FROM EARLY APRIL, 2011)


Another indigestible specimen of world-class conundrum?


Appealing a rejected filing for disability. Wanna know why?


In America, at least, to have a disability is to contradict the allegedly robust American spirit, to somehow disrupt the free-market feudalism that has, evidently, "gotten us to where are" while "paving the way to a better tomorrow." So, it's both afoot and ahead. And it's hogwash. Prosperity is as esoteric and subjective a term as you can get.


Stay on topic, Benb.


Okay. Disability. If you've gone to school for years and years, and you fall ill, then it's stated that you're not disabled if you can do any work. Like an erstwhile biochemist isn't disabled if he or she can be a greeter at Wal-Mart. Not that any job for which you're "overqualified" will humor you in the slightest. It has been, and doubtless will be, suggested that there is a body of laws to prevent malfeasance in this department, but I'll generalize here by saying directly that bureaucracies tend toward a lack of trust in terms of things that haven't happened to them empirically or measurably. And it's simply out of cruel, punitive self-interest.


While there is much more to say about this, I am afraid that I'll have to finish later.

2.01.2011

hooray for readers!

2/1/2011, 12:26 AM

THE PRETEXT: Does anybody have any old blog posts from "good ideas on paper"? I deleted a ton of them by mistake. You could ask why or how this happened, but you'd get the same unsatisfying answer that I've already gotten.

I refer you now to "Comments." Love, Benb xoinfinity